TY - JOUR T1 - Withdrawal of invasive ventilation in a patient with motor neurone disease and total locked-in syndrome JF - Practical Neurology JO - Pract Neurol DO - 10.1136/practneurol-2016-001574 SP - practneurol-2016-001574 AU - Aoife Gleeson AU - Faye Johnson Y1 - 2017/04/20 UR - http://pn.bmj.com/content/early/2017/04/20/practneurol-2016-001574.abstract N2 - Withdrawing invasive ventilation from a person with motor neurone disease who lacks the relevant mental capacity raises ethical issues such as the withdrawal of life-sustaining treatment and establishing best interests. There is little available information on providing optimal symptom management to these patients during the withdrawal process. We describe a man with motor neurone disease who also had total locked-in syndrome at the time of ventilation withdrawal, and we document the legal, ethical, emotional and symptom control issues encountered in supporting him. ER -