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Evaluation and management of adult idiopathic intracranial hypertension
  1. Susan P Mollan1,2,
  2. Catherine Hornby1,3,
  3. James Mitchell1,3,4,
  4. Alexandra J Sinclair1,2,3,4
  1. 1 Metabolic Neurology, Institute of Metabolism and Systems Research, University of Birmingham, Birmingham, UK
  2. 2 Birmingham Neuro-Ophthalmology, Queen Elizabeth Hospital, Birmingham, UK
  3. 3 Centre for Endocrinology, Diabetes and Metabolism, Birmingham Health Partners, Birmingham, UK
  4. 4 Department of Neurology, University Hospitals Birmingham, Queen Elizabeth Hospital, Birmingham, UK
  1. Correspondence to Miss Susan P Mollan, Birmingham Neuro-Ophthalmology, Queen Elizabeth Hospital, Birmingham B15 2BW, UK; soozmollan{at}doctors.org.uk

Abstract

This paper summarises the first consensus guidelines for idiopathic intracranial hypertension as an infographic. Following a systematic literature review, a multidisciplinary specialist interest group met and established questions relating to population, interventions, controls and outcomes (PICO). A survey was sent to doctors who manage idiopathic intracranial hypertension (IIH) regularly. Statements were reviewed by national professional bodies, specifically the Association of British Neurologists, British Association for the Study of Headache, the Society of British Neurological Surgeons and the Royal College of Ophthalmologists and by international experts. Key areas are represented based on the guideline, namely: (1) investigation of papilloedema and diagnosis of IIH; (2) management strategies; and (3) investigation and management of acute exacerbation of headache in established IIH. We present an infographic as an aide-mémoire of the first consensus guidelines for IIH.

  • idiopathic intracranial hypertension
  • headache
  • benign intracran hyp
  • neuroophthalmology
  • papilloedema

This is an open access article distributed in accordance with the Creative Commons Attribution 4.0 Unported (CC BY 4.0) license, which permits others to copy, redistribute, remix, transform and build upon this work for any purpose, provided the original work is properly cited, a link to the licence is given, and indication of whether changes were made. See: https://creativecommons.org/licenses/by/4.0/.

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Footnotes

  • Contributors SPM and AJS drafted the infogram. CH executed the drawing of the infogram. SPM wrote the initial draft. JM and AJS critically reviewed the paper and infogram.

  • Funding AJS is funded by an NIHR Clinician Scientist Fellowship (NIHR-CS-011-028) and by the Medical Research Council, UK (MR/K015184/1).

  • Competing interests None declared.

  • Patient consent Not required.

  • Provenance and peer review Commissioned; externally peer reviewed by Joseph Anderson, Cardiff, UK and Mark Lawden, Leicester, UK. The guideline was also reviewed, critiqued and supported by the following professional bodies: The Association of British Neurologists, the Society of British Neurological Surgeons, the Royal College of Ophthalmologists and the British Association for the Study of Headache.

  • Collaborators Brendan Davis (University Hospital North Midlands NHS Trust), Nick Silver (The Walton Centre NHS Foundation Trust), Simon Shaw (University Hospital North Midlands NHS Trust), Conor Mallucci (The Walton Centre NHS Foundation Trust and Alder Hey Children’s NHS Foundation Trust), Ben Wakerley (Gloucestershire Hospitals NHS Foundation Trust), Anita Krishnan (The Walton Centre NHS Foundation Trust), Swarup Chavda (University Hospitals Birmingham NHS Foundation Trust), Sateesh Ramalingham (University Hospitals Birmingham NHS Foundation Trust), Julie Edwards (University Hospitals Birmingham NHS Foundation Trust and Sandwell and West Birmingham NHS Trust), Krystal Hemmings (IIH UK Charity), Shelly Williamson (IIH UK Charity), Mike Burdon (University Hospitals Birmingham NHS Foundation Trust), Ghaniah Hassan-Smith (University of Birmingham), Kathleen Digre (Moran Eye Center, University of Utah) Grant Liu (Children’s Hospital of Philadelphia and Hospital of the University of Pennsylvania), Rigmor Jensen (Danish Headache Centre, Copenhagen), Jane Anderson, (Cambridge University Hospitals NHS Foundation Trust), Peter Goadsby (King’s College Hospital), Tim Matthews (University Hospitals Birmingham NHS Foundation Trust) and Jan Hoffman (University Medical Centre Hamburg).

  • Correction notice This article has been corrected since it was published Online First. The provenance and peer review disclaimer incorrectly said the paper was not commissioned.

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